Patients Receiving Palliative Care and Their Experiences of Encounters With Healthcare Professionals

Elina Haavisto; Eriksson Sofia; Cleland Silva Tricia; Koivisto Jaana-Maija; Kausamo Katariina; Soikkeli Jalonen Anu

doi:10.1177/00302228221077486

Patients Receiving Palliative Care and Their Experiences of Encounters With Healthcare Professionals

Elina Haavisto, Eriksson Sofia, Cleland Silva Tricia, Koivisto Jaana-Maija, Kausamo Katariina, Soikkeli Jalonen Anu

Health Sciences

Research output: Contribution to journal › Article › Scientific › peer-review

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Abstract

The study aimed to explore experiences of encounters with health care professionals among patients receiving palliative cancer care in specialist palliative care inpatient units. A qualitative explorative study design was conducted in a specialist palliative care inpatient setting. Data collection was implemented using semi-structured individual interviews (20 palliative care cancer patients) and analysed with inductive content analysis. Palliative care patients experienced both meaningful and disrespectful encounters with healthcare professionals. The meaningful encounters encompassed authentic and supportive experiences, while the disrespectful encounters included indifferent and inadequate experiences. Caring for a patient receiving palliative care requires care beyond tending to a patient’s physical needs. Patients should be encountered holistically and as equal human beings without highlighting their roles as patients. The healthcare professionals and the organisations should also acknowledge the importance of time and effort spent for encounters and conversations with the patients instead of concentrating resources mainly on physical care.

Original language	English
Journal	Omega (United States)
DOIs	https://doi.org/10.1177/00302228221077486
Publication status	E-pub ahead of print - 2 Mar 2022
Publication type	A1 Journal article-refereed

Keywords

cancer
encounter
end-of-life
hospital care
palliative care
patient

Publication forum classification

Publication forum level 1

ASJC Scopus subject areas

Health(social science)
Critical Care and Intensive Care Medicine
Life-span and Life-course Studies

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

Access to Document

10.1177/00302228221077486Licence: CC BY

00302228221077486Final published version, 659 KBLicence: CC BY

https://urn.fi/URN:NBN:fi:tuni-202209267272Licence: CC BY

Cite this

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title = "Patients Receiving Palliative Care and Their Experiences of Encounters With Healthcare Professionals",

abstract = "The study aimed to explore experiences of encounters with health care professionals among patients receiving palliative cancer care in specialist palliative care inpatient units. A qualitative explorative study design was conducted in a specialist palliative care inpatient setting. Data collection was implemented using semi-structured individual interviews (20 palliative care cancer patients) and analysed with inductive content analysis. Palliative care patients experienced both meaningful and disrespectful encounters with healthcare professionals. The meaningful encounters encompassed authentic and supportive experiences, while the disrespectful encounters included indifferent and inadequate experiences. Caring for a patient receiving palliative care requires care beyond tending to a patient{\textquoteright}s physical needs. Patients should be encountered holistically and as equal human beings without highlighting their roles as patients. The healthcare professionals and the organisations should also acknowledge the importance of time and effort spent for encounters and conversations with the patients instead of concentrating resources mainly on physical care.",

keywords = "cancer, encounter, end-of-life, hospital care, palliative care, patient",

author = "Elina Haavisto and Eriksson Sofia and Tricia, {Cleland Silva} and Koivisto Jaana-Maija and Kausamo Katariina and Anu, {Soikkeli Jalonen}",

note = "Funding Information: The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: This work was supported by the Finnish Government research funding (Satakunta Hospital District) Publisher Copyright: {\textcopyright} The Author(s) 2022.",

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AU - Haavisto, Elina

AU - Sofia, Eriksson

AU - Tricia, Cleland Silva

AU - Jaana-Maija, Koivisto

AU - Katariina, Kausamo

AU - Anu, Soikkeli Jalonen

N1 - Funding Information: The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: This work was supported by the Finnish Government research funding (Satakunta Hospital District) Publisher Copyright: © The Author(s) 2022.

PY - 2022/3/2

Y1 - 2022/3/2

N2 - The study aimed to explore experiences of encounters with health care professionals among patients receiving palliative cancer care in specialist palliative care inpatient units. A qualitative explorative study design was conducted in a specialist palliative care inpatient setting. Data collection was implemented using semi-structured individual interviews (20 palliative care cancer patients) and analysed with inductive content analysis. Palliative care patients experienced both meaningful and disrespectful encounters with healthcare professionals. The meaningful encounters encompassed authentic and supportive experiences, while the disrespectful encounters included indifferent and inadequate experiences. Caring for a patient receiving palliative care requires care beyond tending to a patient’s physical needs. Patients should be encountered holistically and as equal human beings without highlighting their roles as patients. The healthcare professionals and the organisations should also acknowledge the importance of time and effort spent for encounters and conversations with the patients instead of concentrating resources mainly on physical care.

AB - The study aimed to explore experiences of encounters with health care professionals among patients receiving palliative cancer care in specialist palliative care inpatient units. A qualitative explorative study design was conducted in a specialist palliative care inpatient setting. Data collection was implemented using semi-structured individual interviews (20 palliative care cancer patients) and analysed with inductive content analysis. Palliative care patients experienced both meaningful and disrespectful encounters with healthcare professionals. The meaningful encounters encompassed authentic and supportive experiences, while the disrespectful encounters included indifferent and inadequate experiences. Caring for a patient receiving palliative care requires care beyond tending to a patient’s physical needs. Patients should be encountered holistically and as equal human beings without highlighting their roles as patients. The healthcare professionals and the organisations should also acknowledge the importance of time and effort spent for encounters and conversations with the patients instead of concentrating resources mainly on physical care.

KW - cancer

KW - encounter

KW - end-of-life

KW - hospital care

KW - palliative care

KW - patient

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M3 - Article

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SN - 0030-2228

JO - OMEGA: JOURNAL OF DEATH AND DYING

JF - OMEGA: JOURNAL OF DEATH AND DYING

ER -

Patients Receiving Palliative Care and Their Experiences of Encounters With Healthcare Professionals

Abstract

Keywords

Publication forum classification

ASJC Scopus subject areas

UN SDGs

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Cite this